Wilson's disease at a glanceWilson's disease (WD) is a rare genetic disorder of impaired copper metabolism that causes severe hepatic and neurologic symptoms. It is lethal without a treatment.
Patient & Families resources
Many organizations are dedicated to improving awareness about Wilson and other Orphan diseases. Such organizations provide important educational resources & support services for the Wilson Disease community, as well as information about other inherited rare diseases:
Wilson Disease Association International (WDA)
Bernard Pepin Association for Wilson Disease in France Association Bernard Pepin Pour La Maladie de Wilson
National Reference Center for Wilson Disease in France
Centre National de Référence Wilson
Asociación Española de Familiares y Enfermos de Wilson (AEFE)
La Fundació per amor a l?art
Spanish Foundation, founder of the Wilson project
American Association for the Study of Liver Diseases (AASLD)
European Association for the Study of the Liver
EURORDIS - Rare Diseases Europe
EURORDIS Plateforme Maladies Rares
National Organization for Rare Disease (NORD)
This nonprofit organization is dedicated to people working with or affected by rare, orphan or neglected diseases.