Wilson's disease at a glance

Wilson's disease (WD) is a rare genetic disorder of impaired copper metabolism that causes severe hepatic and neurologic symptoms. It is lethal without a treatment.

Patient & Families resources

Many organizations are dedicated to improving awareness about Wilson and other Orphan diseases. Such organizations provide important educational resources & support services for the Wilson Disease community, as well as information about other inherited rare diseases:

Wilson Disease Association International (WDA)
Website: www.wilsonsdisease.org

EuroWilson
Website: www.eurowilson.com

France
Bernard Pepin Association for Wilson Disease in France Association Bernard Pepin Pour La Maladie de Wilson
Website: www.abpmaladiewilson.fr

National Reference Center for Wilson Disease in France
Centre National de Référence Wilson
Website: www.cnrwilson.fr

Germany
Morbus Wilson
Website: www.morbus-wilson.de

Spain
Asociación Española de Familiares y Enfermos de Wilson (AEFE)
Website: www.enfermedaddewilson.org

La Fundació per amor a l?art
Spanish Foundation, founder of the Wilson project
Website: fpaa.es

American Association for the Study of Liver Diseases (AASLD)
Phone: 703-299-9766
Website: www.aasld.org

European Association for the Study of the Liver
Website: www.easl.eu

EURORDIS - Rare Diseases Europe
EURORDIS Plateforme Maladies Rares
Website: www.eurordis.org

National Organization for Rare Disease (NORD)
Website: www.rarediseases.org

Check Orphan
This nonprofit organization is dedicated to people working with or affected by rare, orphan or neglected diseases.
Website: checkorphan.org